The best time to share your experience is after the study is finished. When patients speak publicly about their clinical study experience, their words may have unintended impact,
even subconsciously, on how other study participants or even investigators report the ongoing results of the clinical study. Information regarding a study while it is open is confidential. The information about the study
should not be shared publicly (including social media sites, news outlets, TV interviews, etc.). The study can be discussed once it is fully completed, meaning all patients have completed participation in the study.